We haven’t had much to share as of late, but as the saying goes….
Monday was our monthly appointment and since things have been going so slow we figured, why not make it a marathon appointment?The only marathon I will ever run Because who doesn’t want to spend their whole day in waiting rooms? I know I do!
On Friday evening Tyler got the reminder phone call about his appointments, unfortunately we missed that call. In the message the mentioned a bone marrow biopsy.. WHAT?!! <------that’s what Tyler said. We called back, but they were closed so we had to wait until we got in on Monday. We were a bit nervous thinking about it all weekend, but I kept assuring Tyler it would really be ok (then praying that I knew what I was talking about). I vaguely remember being told that we were making a tentative appointment for one, just in case one last test came in off. makes sense right?
Monday morning, we get there bright and early for blood work. One of our nurses from the BMT unit was filling in and taking blood. It was so great to see her. She was definitely one of our favorites! We immediately saw the girl who had called us and asked about the bone marrow biopsy. She wasn’t sure, but was determined to find out if Tyler really did need one. Long story short, I was right, he didn’t! We moved forward with appointments.
We had breakfast after the blood draw
We hung out in the 4th floor waiting room something about that extra clean smell brings peace to my soul
We met with Tylers’ doctor (always pleasant)
It took awhile….
His blood counts look fabulously normal
He had an EKG, next time I’m making him put his own stickers on… I think we have it figured out
Tried to pick up the meds
Went and had an Echocardiogram, did you know those take 45 minutes? I sure did fall asleep in a chair in that dark room.
Picked up meds
Listened to an A Capella group
Grabbed a not so fabulous pizza
Went home! And because it’s not a trip to Salt Lake without something crazy happening… On the road back to the freeway, at a stoplight, there was a man laying in the street… LAYING IN THE STREET! He must have fallen. There were people all around him, one lady even brought him a jacket to use as a pillow. really lady? A pillow? How about lifting this guy up and off the street.
We saw a few other people we recognized. It warms my heart to run into them. Everything looks great for Tyler. The medicine is working as it should. His body is responding. We can’t ask for much more.
I am blessed to have a great friend (whom I share a b-day with) who has a sister in law with CML. A few weeks ago we had them over to our house. It’s inspiring to meet other people whose lives are on similar paths except they are ten times the people we will ever be. Her and her husband were beyond awesome and I hope we get to spend more time with them in the future. Her husband was VERY well versed in all things CML. It’s kinda nice to talk with someone who knows so much. He knew a lot of statistics and information we hadn’t heard. We are glad for our friends who brought us together.
Other then that… life is good as usual. We both had birthdays. We are both getting older Tyler more so then me. Sawyer is growing at an unprecedented rate. He does hilarious things daily and is obviously the worlds smartest baby.
We wont be back to Huntsman till next month, so hopefully nothing eventful with Tyler’s health happens in the meantime. or ever again
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