Tuesday, July 2, 2013

Life with Leukemia: From Taj mahal to Holiday Inn

So more updates!
Our ID doctor came in and told us they wanted to test Tyler for TB. A more comprehensive test then just the skin prick, no big deal. He would just have to do some flem testing a few times a day, no big deal. We may have to switch rooms, no big deal. They aren't really convinced that he has it so we aren't too worried.
Fast forward an hour and our aide walks in with a mask on while we are playing card games. Instantly I joke with her and asked if we are being quarantined. She looks at me funny, then I ask why she's wearing the mask. She asked if the doctors have talked to me, uhh no. So I ask her what is going on. She looks like a deer in the headlights and backs out of the room and says "I'll be right back, I'll go get someone to talk to you." WHAT?!?!? 
Our most favorite nurse C comes in, also wearing a mask, and sits down with us. She asks if they Dr explained about the TB, yep he did. Ok great she says well then he told you that you would have to switch to the U hospital right... uhh no. (no one tell Hilary and Rustys kids, they might come try and break us out for fear we will become Ute fans)  but ok, no big deal.
Tyler was pretty bummed. C has done a lot to help us feel comfortable and taken care of and we have grown to love her, We even shed a few tears. So she talked us through what would happen and how they needed us in a negative pressure room so the air from our room doesn't filter out into the other patients rooms in case there is TB. understandable.
So we quickly packed up, you wouldn't believe the stuff I have here, and we were wheeled through some tunnels to the U.That's when it hit us.
This is a big deal!
First of all, it's definitely not as nice as Huntsman. Big deal. It smells weird. Big deal. We asked for the menu and they laughed, food is made three times a day and unless you have food restrictions you will eat what they make, when they make it. Big deal. The bedside table is sticky. gross. My bed/couch has some seriously unexplained stains on it and the walls rattle every five seconds.
I could go on.
They laugh because they can tell we are a bit shell shocked.
The second BIG shocker was we were under the impression that we would be here a day and half then we would get to return to the palace. lie. This doctor here says the test has to be done over a span of three days. So we are here till Friday at the latest.
We laugh because we know it's a test. We know it will help us grow. We know that miracles happen and can happen here in this hospital. We know we were spoiled. We know that by being here, we don't have to see Dr. Pool for a few days:). We know amazing Dr's work here just like at Huntsman. And we know this wont last.
There is better cell service here and I'm pretty sure we will have an awesome view of some fireworks come Thursday night. The nurses went out of their to find us food, and get us settled.
We are hoping for huge blessings from this place and to be back to our home at Huntsman (we miss our nurses terribly already) and our real home soon.
p.s. please realize sarcasm is how I cope and I truly am grateful for an opportunity for Tyler to get better.

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